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Data Talks
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Cancer centers across the world serve both dense urban centers and remote rural areas including Indigenous populations. This book advances knowledge in cancer data discussions for and with Indigenous populations, academics, researchers, Nations, and institutions, as well as allies who work with Indigenous cancer data. The book discusses current prevalence, incidence, and mortality patterns across populations with overall goals of understanding and utilizing data towards cancer control. Chapters engage with data as it relates to Nation to Nation governance, treaty relationships, race, ethnicity and Indigenous-related classifications, environmental genetics, chemistry, cancer data protections, small population research methods, and more. Written by international leaders in cancer research and allied fields, and Indigenous community advisory board members, the book focuses on existing and future areas in need of development related to community-based data and cancer control for and with Indigenous communities. This book forms the basis for ongoing discussion among scientific data leaders and community-based engagements from a range of disciplines on improving standardization, availability of methods and tools for analysis, protections of data, data ethics, and creation of community-based dissemination processes to build greater understandings of cancer control opportunities for Indigenous communities. This book is an open access.
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Rodney C. Haring, PhD, MSW is inaugural Chair of the Department of Indigenous Cancer Health at Roswell Park Comprehensive Cancer Center. Dr. Haring (Beaver Clan) is a citizen of the Seneca Nation of Indians and resides on the Cattaraugus Indian Reservation (NY). He holds a doctoral degree in social work with over 15 years of social work practice and a former delegate on the US Department of Health and Human Services, American Indian and Alaska Native, Health Research Advisory Council. He is also the lead delegate for the historic MoU between Rowell Park and Indian Health Services with the common mission of addressing health burdens in Indigenous communities. In 2017 he was awarded an Impact Award by the National Indian Health Board and in 2021 he received the National Federation of Just Communities Hero Award. His research to practice interests intersect eliminating disparities and encouraging resiliencies within First Nations and Indigenous societies.
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