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How can we support adolescent mental health? Anxiety, sadness, social pressure, identity struggles ... adolescence can be overwhelming. In this illustrated book, epidemiologist Maria Melchior and artist Chaz Hutton cut through the myths to explain what shapes young...
Living with a rare disease is not only a medical experience—it is a human one. It reaches into every part of life: the body that struggles, the mind that questions, the family that hopes, and the community that rallies. This book began with that truth and has followed...
Rare diseases are so much more than a collection of complex names and difficult diagnoses. They tell unique human stories and patient journeys, marked by diagnostic wandering, but also by resilience and solidarity. They affect millions of individuals in France and tens...
The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2024, these webinars focused on challenges in rare diseases.The Rare Disease Gazette is a...
The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases.The Rare Disease Gazette is a...
It has been an awe-inspiring journey to read and engage with the powerful voices of these poets, who have shared their experiences of visual impairment and vision loss. Each poem is a testament not only to their profound resilience but also to the creative expression...
Every morning, Moon, the little raccoon, faces mockery due to his father’s awkward movements, which are caused by a rare disease. But a presentation about bravery will change everything. A collective dance is born, transforming differences into solidarity. A moving...
Birgit, a little rabbit with a rare disease, lives with her big sister, Capucine, and her parents. In the forest, legend has it that they are real superheroes. Mayeul, the curious little squirrel, leads an investigation to uncover their secret. Is it superpowers or...
DACMAR is a FAST BUSINESS GUIDE for newbie biotech entrepreneurs. GIVE ME 5 MINUTES: If you know nothing about modern biotech business lingo, grab this book and read the LEARNING BOXES. In 5 minutes, you’ll knowDACMAR – you’ll know enough! If you WANT TO BUILD a...
Philanthropy is valued in French culture. According to the Fondation de France’s barometer of French philanthropy, there are 4,650 Funds and Foundations in France in 2023. These structures commit nearly 11 billion euros per year to serve the general interest, an amount...
Willi the lonely little grizzly is getting ready for his first day at school. But one after the other, all the doors close in from of him because he is different. Then he meets an elephant who knows about being different … ABOUT THE AUTHORMedical secretary, Sonia...
As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare diseases. Cindy, Lola and Enzo tell their stories of how a rare disease is a daily...
Hercules the little fish lives in a bubble. No one dares venture too close, andHercules remains alone, isolated from the nastiness that surrounds him. Yet one day, a friendly starfish manages to get close enough …ABOUT THE AUTHORMedical secretary, Sonia Goerger has been...
In the evening, when the burrow sleeps peacefully, Charlotte, the little marmot, is all excited. Mummy Marmot’s soft lullaby cannot calm her and days are tough. Will the Marmot family manage to channel Charlotte’s boundless energy and get a goodnight’s sleep?ABOUT...
The voices of millions of people, many children, living with rare diseases are often unheard. People living with rare diseases are silenced through stigma and discrimination. Poetry gives its writers power through self-expression. In this magnificent project, Dr...
A true sensory experience, this book invites us to discover the diversity and variability of rare diseases. Using a mixture of different visual art techniques, Lucie Albon’s artwork conveys the full complexity of rare diseases. As each rare disease has a unique impact...
Arno is an adorable little sparrow full of energy. But one day, the wind told his parents thatArno had a disease that would take away the beautiful things he had acquired over the years. However, despite life’s injustice, Arno's smile remains. His smile is an eternal...
At snack time, by the fireplace, Grandmother Wolf tells her wolf pups the story of Wolfy, a strange little wolf who had difficulty speaking and understanding certain things. A little wolf with a heart-shaped, garnet-coloured spot near his mouth...ABOUT THE AUTHORSSonia...
When the two elder members of a family of wild boars have to look after two small boarlets affected by a disease that prevents them from seeing properly and having a sense of smell, things do not go as planned.Together, they will have to deal with the difficult,...
Sacha is a mischievous little cat who likes to play pranks on his mom. Suffering from a neuromuscular disease, he will gradually lose the use of his legs. But, being in a wheelchair will not prevent him from continuing to play with his comrades!ABOUT THE AUTHORS Medical...
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