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This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care,...
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the...
As end of life care is extended to more and more people it is increasingly important that people with progressive neurological disease are recognised as having particular issues as their disease progresses. This group of people with advancing motor neurone disease,...
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